February 21, 2015 Research Papers No Comments

The IOM proposes the illness now be called systemic exertion intolerance disease

By Kristy Hoffman, CBC News, Feb 21, 2015

If you can’t pronounce myalgic encephalomyelitis (ME), you may be in the company of some health-care professionals: Information about the condition, commonly called chronic fatigue syndrome (CFS), is included in fewer than one-third of medical school curricula around the world.

OUR COMMENTS: Briefly put, and re this condition, these positives relate to the understanding of this condition as:

  • A ‘real disease’
  • ‘Not in patient’s heads’
  • ‘Not somatized’ – but stigmatized
  • Rather chronic, complex, multi-system disease
  • A burden to patients and community
  • Highly under-diagnosed – possibly only 10% are diagnosed; often wait years, this causes major complications and other problems;
  • Co-morbid with FM & ES/MCS
  • Affects women and suffers from gender bias
  • Needs its own classification, diagnostic protocol and treatment methods,
  • Highly debilitating and causing great suffering
  • Demands recognition and competence from physicians
  • Needs new name.

Read the article here>>