Selected Findings of the Ontario Report of the Ad Hoc Committee on Environmental Hypersensitivity Disorders, as “Appendix 2” in Recognition Inclusion and Equity – The Time is Now: Perspectives of Ontarians Living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), pages 230-231
Download the findings (11 pages) in the report at https://recognitioninclusionandequity.org/resources/
Environmental Sensitivities-Multiple Chemical Sensitivities Status Report: Advances in Knowledge, and Current Service Gaps.
Download from https://www.womenscollegehospital.ca/care-programs/environmental-health-clinic/
THE BLUEPRINT FOR A MULTI-DEPARTMENT 3-TIER SYSTEM OF CARE
Recognition, Inclusion and Equity: Solutions for of Ontarians with ES/MCS, ME/CFS and FM – The Business Case Proposal (Steering Committee of the OCEEH Business Case Project, 2013) was the sequenced, budgeted, costed plan that was developed from the three research documents written to inform the best design. It made recommendations on the required programs, professionals, dedicated housing personnel, special safe-building specifications, education, training and public awareness programs – all as relevant today as they were nine years ago. (50 pages)
Download OCEEH Business Case – Complete Report
THE MAJOR RESEARCH REPORT INCLUDING THE PATIENT NEEDS IDENTIFICATION STUDY, THE DETAILED DESIGN FOR MULTIPLE TIERS AND COMPONENTS OF THE OCEEH FOR BOTH CLINICAL AND DISABILITY ISSUES
Recognition Inclusion and Equity – The Time is Now: Perspectives of Ontarians Living with Environmental Sensitivities/Multiple Chemical Sensitivity (ES/MCS), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM). Burstyn and MEAO 2013. Major research report addressing current state (survey of patients’ experience, needs, gaps in services designed by Ann Phillips PhD and Erika Halapy M Sc, written by Varda Burstyn); special analysis of women’s, children’s, stigmatization issues; in-depth exploration of proposed model of care and delivery system; in-depth discussion of issues in barrier removal (disability issues) across government and the public sector, providing detailed explanation for the design of the components specified in the business case. (Highlights, 30 pages, full report 250 pages, “Community Voices” needs identification study, 100 pages)
Download Recognition, Inclusion, Equity: Patient Perspective, Complete
Download Recognition, Inclusion, Equity: Patient Perspective, Highlights
Download the Needs Identification Study/Community Consultation only
DEFINTIONS AND THE PROPOSED CLINICAL APPROACH
Chronic, Complex Conditions: Academic and Clinical Perspectives John Molot, MD, FRCFP. November 2013. Comprised a literature scan, descriptions and definitions, and a proposed approach to the clinical framework of best and promising practices in a research framework for new clinical programs. This report explained and affirmed the biophysical approach and rejected the psychogenic approach, and built from this foundation. (120 pages)
Download Academic and Clinical Perspectives
DETAILED COMPILATION AND ANALYSIS OF QUANTITATIVE DATA TO INFORM ASSESSMENT OF PREVALENCE, UNMET NEEDS AND OTHER KEY ISSUES FOR THE BUSINESS CASE
The Quantitative Data, Erika Halapy, Epidemiologist, with Margaret Parlor, Statistical Analyst and President, ME/FM National Action Network, 2013. Submitted to support this business case, a first-ever compilation and analysis of statistical findings in Canada and Ontario with respect to our three groups. (100 pages).
Download the report Download OCEEH_Quantitative Data Report
PHASE 1 REPORT: VALIDATION OF KEY RECOMMENDATIONS OF BUSINESS CASE PROPOSAL
Time for Leadership: Recognizing and Improving Care – Phase 1 Report. July 2017. Eight major recommendations, including updating OHIP codes, government initiated major awareness campaigns, creating safe care in medical and long term care facilities, and a new white paper on the conditions
Download from https://www.health.gov.on.ca/en/common/ministry/publications/reports/environmental_health_2017/default.aspx
FINAL REPORT: VALIDATION OF THE 3-TIER SYSTEM OF CARE AND NEW STUDIES ON PREVALENCE AND ONTARIO PHYSICIAN AWARENESS AND ADDITIONAL CARE PROVISION RECOMMENDATIONS
Care Now: An Action Plan to Improve Care for People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM) and Environmental Sensitivities/Multiple Chemical Sensitivity (ES/MCS). Final Report of the Task Force on Environmental Health, December 2018.
Download from https://www.health.gov.on.ca/en/common/ministry/publications/reports/environmental_health_2018/default.aspx
CRITIQUE FINAL REPORT APPENDIX 6’S “ GUIDING PRINCIPLES ON ES/MCS”
The Centre for Effective Practice’s Guiding Principles for the Diagnosis of Environmental Sensitivities/Multiple Chemical Sensitivity: A New Effort Needed. Varda Burstyn. 1st edition November 2019/second edition January 2020. Toronto.
CRITIQUE FINAL REPORT APPENDIX 6’S “ GUIDING PRINCIPLES ON ME/CFS”
‘MISSING IN ACTION’ – UNRELEASED GOVERNMENT-WRITTEN IMPLEMENATION REPORT
Laying the Groundwork, July 2021. Dr. Brian Schwartz, Public Health Ontario. Still remains an unreleased internal document and represents a broken promise to create care that has never been reviewed or acted upon.
MAJOR RESEARCH REPORT REFUTING 2021 DOCUMENT FROM QUEBEC’S NATIONAL INSTITUTE OF PUBLIC HEALTH DEFINING MCS AS AN ANXIETY DISORDER
Putting the Chemicals Back into Multiple Chemical Sensitivity – Ontario Environmental Health Advocates Address Syndrome de sensibilité chimique multiple, une approche intégrative pour identifier les mécanismes physiopathologiques/ Multiple chemical sensitivity syndrome, an integrative approach to identifying the pathophysiological mechanisms, second edition Lead author Varda Burstyn Collaborating author Maureen MacQuarrie for the Ontario Environmental Health Advocates Group. October, 24, 2022. Toronto. A research document disputing and refuting the 2021 report on MCS from the Quebec’s National Institute of Public Health defining MCS as an anxiety disorder.
